WeCare – at the End of Life
Under the department name WeCare – at the End of Life a number of collaborative projects have been set up between the Universitat Internacional de Catalunya, Àltima and the Catalan Institute of Oncology aimed at developing knowledge in end-of-life care. The faculty aims to achieve a medium and long-term social and clinical impact. The aim is to become an International reference model of excellence in the generation of knowledge about meeting the needs of and caring for people, and the families of people, who have advanced disease and are at the end of their lives, by anticipating problems and providing solutions to the personal challenges that arise in these special times. We also intend to lead opinion in all aspects connected with this matter.
The main line of work in the department is directed at promoting interdisciplinary, multidimensional applied research relating to end-of-life palliative care.
End-of-life is a sensitive area in which both patients and their families experience new emotional, social and spiritual needs.
As professionals we propose the following objectives with this project
That will contribute to the prevention and treatment of the problems experienced by patients with advanced disease at end-of-life and by their families.
Spreading this knowledge
Raising public awareness
Of the needs of end-of-life care.
Study on the Wish to Hasten Death (WTHD)
The attention to disease at the end of life entails great complexity. In adults, the phenomenon of Wish to Hasten Death (WTHD) has not been extensively studied from a multidisciplinary perspective. Our group addresses the knowledge regarding WTHD of dying patients, from the perspective of those who are suffering, and those in their immediate environment. From a methodological point of view, the integrated use of qualitative and quantitative techniques is allowing us to increase the understanding of this phenomenon. Understanding “Meaning in Life” (MiL) as one of the losses that occur in these patients has led us to a deeper understanding of its relationship with WTHD.
While in adults serious illness and death can be understood as part of a natural process, the possibility of dying in the beginning of life is difficult to accept. Our group is also studying this topic from a clinical approach, developing perinatal palliative care.
Prevention, early detection and treatment of problems related to the direct care of patients, especially of their symptoms and other health problems.
Ethical, emotional, spiritual
Taking decisions at the end of life: factors that influence the different ethical, emotional and spiritual aspects. With special emphasis on studying the desire to advance death.
Social and family aspects that concern end-of-life care.
With an effect on:
- The socio-cultural impact that governs decision-taking in the family sphere.
- Experiencing loss before death (grieving).
Particularly: a field that has received little attention up to now, studying the physical and psychosocial aspects in connection with patients with haematological neoplasias.